Your heart goes out, and you want to do everything possible.. He had the softest blue eyes, an easy smile and a contagious giggle. His quiet fight against this terrible disease was incredible," the doctor wrote in a tribute to her little patient. I love all of them, she said. Over the years, Engel has shared regular updates on his son's condition with the TODAY team and has been candid about the struggles and the joys of parenting a child with special needs. Born in September 2015 . Zero. Richard Engel Says His Son Henry Has 'Taken a Turn for the Worse' Due to Rare Neurological Disorder, Savannah Guthrie Posts Beautiful Tribute to Richard Engel and Wife Mary After Son Henry's Death, Richard Engel Honors Late Son Henry on His 7th Birthday, Gives 'Big Thank You' for Support, Everything Richard Engel Said About 'Beloved' Son's Journey with Rett Syndrome Before His Death, Hoda Kotb Gets Emotional as She Shares Tribute After 'Heartbreaking' Death of Richard Engel's Son, Richard Engel Celebrates Son's 5th Birthday, Shares Message to All Kids with Rett Condition, Richard Engel Reveals Coronavirus Lockdown Has Been a 'Nightmare' for Son with Rett Syndrome, Richard Engel's Younger Son, 1, Takes His First Steps as Big Brother Henry Is 'Cheering' Him On, Richard Engel's Wife Mary Pens Essay About 6-Year-Old Son Henry's Death: 'One Last Goodbye', Richard Gere's 3 Children: Everything to Know, Recovering from Multiple Seizures and Autoimmune Encephalitis, Texas Boy Hopes to Go to 2nd Grade in Person, How This Mother Went to Extremes to Help Her Mentally Ill Son: 'He Knows He's Locked up Because of Mom', NFL Sportscaster and Former Player Irv Cross Had Stage 4 CTE, New Findings Show, Colin Farrell's 2 Sons: Everything to Know, How Bruce Willis' Family Is Helping Him 'Live as Full a Life as Possible' After Dementia Diagnosis, Emily Maynard Johnson Shares Sweet Photos of Baby Jones Wearing New Personalized Cranial Helmet, revealing that "school was the only place where. 3 min read. ', Sharon Stone Shares Tribute to Her Late Brother 2 Months After His Death: 'Thinking of My Bro', How Bruce Willis' Diagnosis of Frontotemporal Dementia Differs from Alzheimer's Disease, What Is Frontotemporal Dementia? Engel is known for having covered the Iraq War, the Arab Spring and the Syrian Civil War. We always surrounded him with love and he returned it, and so much more. IE 11 is not supported. Engel opened up on the "Today" show in March with an emotional essay about his first son, Henry, finally saying "Dada" after being diagnosed with Rett Syndrome, a rare genetic neurological. Richard Engel announced the death of his 6-year-old son Henry after his years-long battle with Rett Syndrome, a rare genetic neurological . "But Henry's journey continues. After a series of medical exams and a genetic test, doctors discovered that he had a mutation in his MECP2 gene. . His cells are being used in cutting-edge research. August 18, 2022 / 1:26 PM She added that Henrys parents worked so hard to help him, doing physical and occupational therapy with him every day and advocating for research in hopes that it could save their son and thousands of others. [38][39][40] Engel produced "Tip of the Spear", a series of NBC reports on the hardships and dangers faced by American soldiers, for which he won a 2008 George Foster Peabody Award. Rett syndrome is a rare neurological disorder that affects the way the brain develops, according to the Mayo Clinic. Engel has shared regular updates on his son's condition. He doesn't sit up straight. But he did it. [13], He later went to Stanford University, where he occasionally wrote for The Stanford Daily. That inspired us to start thinking of different ways we can increase the protein thats made by this gene, Zoghbi explained. [27] He was the only American television correspondent to remain in Baghdad for the entire war. What is most amazing, however, is the impact Henry had on so many of us at the Duncan NRI and on our Rett research. NBC News chief foreign correspondent Richard Engel and his wife Mary Forrest welcomed their second child, a baby boy, over the weekend. Mary and Richard. He never gave up.". Henry Engel died in August 2022 at the age of six. Then we realized it was a genetic condition, and hes not going to get over it.. It is more often found in girls and there is no cure. [36] Engel's award-winning documentary, War Zone Diary, chronicled the everyday realities of covering the war in Iraq. He had a tremor. Please enter valid email address to continue. Engel told PEOPLE in 2019 that Henry was "lacking a conductor gene" and that a medical team at Texas Children's Hospital was "trying to build a treatment that could help immensely.". Arkansas woman indicted for selling stolen body parts to Pennsylvania man. She recalled that losing Henry was one of the hardest days for her and her research team. He was in the hospital for 6 weeks, but is now home and getting love from brother Theo," he wrote on Twitter at the time. Were excited, nervous and thankful.". NBC News chief foreign correspondent Richard Engel shared a photo of his late son, Henry, on his 7th birthday. Males are more likely to die from the illness. Richard Engel Reveals Coronavirus Lockdown Has Been a 'Nightmare' for Son with Rett Syndrome. Special needs kids have the most expressive eyes.. link to donate to support research in Henry's memory. NBC News presenter Richard Engel has penned a tender tribute to his young son, a month on from his tragic death at six years old. Market data provided by Factset. With regular therapies to keep his body moving and his mind active, he was making progress. Hoda Kotb and Savannah Guthrie reunited with NBC's Richard Engel and his wife Mary on Today, eight months after the death of their six-year-old boy. Richard Engel has opened up about the feeling of watching his baby son reach each developmental milestone while knowing his older son, who has a rare neurological disorder, may never reach. . Richard and Mary Engel, with son Henry on Wednesday, October 3, 2018. Get browser notifications for breaking news, live events, and exclusive reporting. We always surrounded him with love and he returned it, and so much more. But for me it was a validation, an acknowledgement that hes in there, knows me, knows that his mother and I are forces for good in his life, and above all, that he loves us.. Never miss a story sign up for PEOPLE's free daily newsletter to stay up-to-date on the best of what PEOPLE has to offer, from celebrity news to compelling human interest stories. Richard Engel, chief foreign correspondent for NBC News, announced on Thursday that his 6-year-old son Henry, diagnosed with Rett syndrome as an infant, had died. At the time, he added that Henry was "now home and getting love from brother Theo" after being hospitalized for six weeks. The institute's Dr. Huda Zoghbi, who studied Henry's mutation, called him "special in so many ways. ", "His condition progressed and he's developed dystonia: uncontrolled shaking/ stiffness," he shared. The NBC News chief foreign correspondent, 48, shared the heartbreaking news on Twitter Thursday. "Our beloved son Henry passed away. His muscles are moving. Richard Engelhas some personal news to report. "His loving and endearing smile, and the way he connected with his eyes, stole my heart from the time I met him. "It was a long time coming, which made it all the sweeter an unexpected reward," he wrote. He just will smile and light up your day.. "Our beloved son Henry passed away. In 2020, Engel opened up about the realities of how the COVID-19 lockdown impacted Henry and their family. He had a lot of different weaknesses in his motor system.. The son of NBC News chief foreign correspondent Richard Engel,Henry Engel, diedeight months ago at age 6 but hes still at the center of the research that will hopefully prevent other children from losing their lives to the neurological disorder Rett syndrome. "Our beloved son Henry. Theodore,. ", Researchers are making amazing progress using Henrys cells to help cure RETT Syndrome so others dont have to endure this terrible disease. It was an exciting Labor Day at Richard Engel's house. ", In another tweet on Thursday, Engel said: "Researchers are making amazing progress using Henry's cells to help cure RETT Syndrome so others don't have to endure this terrible disease. The interview also focused on Iran's empowerment as a result of the war in Iraq and how to counteract Iran's influence in the region. Richard was first married to a fellow Stanford student and parted ways in 2005. The father of two admitted he and his wife "were coping better before COVID," revealing that "school was the only place where [Henry] could interact with other children," which was a huge asset for him. In a tweet posted on Aug. 18 . While many media outlets pulled their journalists out of Iraq shortly after shelling began in March 2003, Engel stayed, and was subsequently one of the only Western journalists in the country. Engel also provided a link tothe Texas Childrens Hospital, which is fundraising for the cause. ", Richard Engel Honors Late Son Henry on His 7th Birthday, Gives 'Big Thank You' for Support, Richard Engel's Wife Mary Pens Essay About 6-Year-Old Son Henry's Death: 'One Last Goodbye', Hoda Kotb Gets Emotional as She Shares Tribute After 'Heartbreaking' Death of Richard Engel's Son, Richard Engel Announces Death of 'Beloved' 6-Year-Old Son Henry, Everything Richard Engel Said About 'Beloved' Son's Journey with Rett Syndrome Before His Death, Savannah Guthrie Posts Beautiful Tribute to Richard Engel and Wife Mary After Son Henry's Death, Richard Engel Says His Son Henry Has 'Taken a Turn for the Worse' Due to Rare Neurological Disorder, Richard Engel Celebrates Son's 5th Birthday, Shares Message to All Kids with Rett Condition, Richard Engel Reveals Coronavirus Lockdown Has Been a 'Nightmare' for Son with Rett Syndrome, Richard Engel's Younger Son, 1, Takes His First Steps as Big Brother Henry Is 'Cheering' Him On, Gilbert Gottfried's Widow Dara Remembers Late Comedian, 1 Year After His Death (Exclusive), 6-Year-Old Enjoys Fundraiser for Her Rare Disease: I Wore 'a Unicorn Onesie and Butterfly Wings! [42], Engel reported extensively on the Arab Spring movement. / CBS News. Engel has shared updates on Henry over the years, writing essays in 2018 and 2019 about both the joys and heartbreaks the family experienced. [15] Engel worked for ABC News as a freelance journalist during the initial invasion of Iraq by U.S. forces. Thats the nature of this disease.. Everything to Know About Bruce Willis' Diagnosis, One Year into Ukraine War, NBC's Richard Engel Shares Insights from the Ground: 'Still in the Early Phases', their late son, his disease and the new balcony dedicated to his memory. Born on Sept. 29, 2015, Henry was slow to reach certain developmental milestones as an infant. Fox says Parkinson's battle getting 'harder': 'I'm not gonna be 80', Padma Lakshmi claps back at trolls: 'I have boobs, I have nipples', Kendall Jenner rocks sheer top, fur mini skirt for date night with Bad Bunny, Miley Cyrus mom, Tish Cyrus, engaged to Prison Break star Dominic Purcell, Fans confused over Lala Kent, Ariana Madixs White House dinner appearance, Woman has 'loud and full body orgasm' during LA Philharmonic concert. This disorder, which has no cure, causes a progressive loss of motor skills and language. Mary and Richard.. "Our beloved son Henry passed away. In a 2019 essay about his family, the proud father gushed about an important milestone Henry had just met. He said in a candid essay for Today that Henry was "not doing very well" considering the circumstances. The condition also led to dystonia, an uncontrolled shaking/stiffness. [citation needed] He frequently traveled outside Iraq's Green Zone, the fortified international zone in central Baghdad, to report on the genuine state of Iraqi life.[30]. Thats what we have to do, she recalled. Our beloved son Henry passed away. Engel continued his coverage of the Iraq war in Baghdad as NBC's primary Iraq correspondent.[15]. It was a special time.. Engel added he's looking forward to life as a "Dada"of two. He will always be with us, even now hes hard at work to help other children whose lives are more difficult than they should be, the NBC News chief foreign correspondent said on TODAY. Nonetheless, he interacts . [52] In April 2015, NBC had to revise the kidnapping account, following further investigations by The New York Times, who had conducted several dozen interviews, suggesting that the NBC team "was almost certainly taken by a Sunni criminal element affiliated with the Free Syrian Army," rather than by a loyalist Shia group. Richard Engel's son Henry dead at age 6 after battling neurological disorder By Francesca Bacardi August 18, 2022 | 11:34am Richard Engel announced the heartbreaking news that his son. This is how we will honor his life. https://t.co/M8LV8SHv6r pic.twitter.com/21Ja6TOtjH. Richard Engel with his wife, Mary Forrest, and Henry. "He continues to be an inspiration for Dr. Zoghbi and her team as they work to find effective treatments for Rett syndrome, and they already are making significant progress with Henrys own cells," the post says. [15] In May 2008, he interviewed U.S. President George W. Bush, largely about his speech to the Israeli Knesset. He couldnt speak, but he was young. Sitemap, Your California Privacy Rights 9,366, 2023 NYP Holdings, Inc. All Rights Reserved In June, Engel said Henry had taken a turn for the worse, developing dystonia, characterized by shaking and stiffness. "But for me it was a validation, an acknowledgement that hes in there, knows me, knows that his mother and I are forces for good in his life, and above all, that he loves us.". In April 2008, Engel became Chief Foreign Correspondent of NBC News. Savannah Guthrie has shared a touching tribute to NBC News chief foreign correspondent Richard Engel's son, Henry after he died from Rett syndrome, a rare neurological disorder, at age six. Engel and Bush met privately in February 2007. While describing the challenges Henry was facing, the journalist emphasized how lucky he felt to have Henry in his life. 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All Rights Reserved, Richard Engels wife details spending time with late sons body after his death, Hoda Kotb gets emotional honoring Richard Engels late son Henry, Savannah Guthrie honors Richard Engels late son, Henry, with touching tribute, Richard Engels son Henry dead at age 6 after battling neurological disorder, Nick Cannon celebrates Jada Pinkett Smith's 'Red Table Talk' cancellation: 'Good', Chance the Rapper's wife posts cryptic quote after his dance with another woman, Meghan Trainor 'can't walk' after 'nightmare' sex with 'big boy' Daryl Sabara, Famed New York socialite Patty Raynes found dead in her Palm Beach home, New photo of Meghan Markle that she 'never wanted the world to see', Michael J. Never miss a story sign up for PEOPLE's free daily newsletter to stay up-to-date on the best of what PEOPLE has to offer, from juicy celebrity news to compelling human interest stories. NBC News Richard Engels son Henry has died from disorder. Legal Statement. NBC News chief foreign correspondent Richard Engel, who for years has been open about his son's journey with Rett syndrome, announced Thursday his 6-year-old boy has died. 2023 FOX News Network, LLC. At the time, he was 3 1/2 years old and hadnt called Engel Dada yet. Quotes displayed in real-time or delayed by at least 15 minutes. I worked 16 years to find the (MECP2) gene. He explains the conflict as occurring in six stages, or as six separate wars: Engel received a request from the Bush administration to meet with President George W. Bush at the White House to discuss Iraq and Mideast policy. "His condition progressed and he's developed dystonia: uncontrolled shaking/ stiffness.". "Henry would have turned 7 today," Engel tweeted on Sept. 29. For the age expectancy of people living with Rett . And with a smile. Henry had been treated at Texas Children's Hospital's Duncan Neurological Research Institute since 2018. document.getElementById( "ak_js_1" ).setAttribute( "value", ( new Date() ).getTime() ); Richard Engel is trying to find the good on a very sad day. At age 13, he joined a wilderness survival camp where he learned about leadership and how to be more independent. His son Henry suffered from a devastating diagnosis of Rett Syndrome. And you see him how hes struggling to really do the best he can so he can move, so he can gain some strength to crawl or do something., You feel the pain of Rett syndrome, and I felt that pain with so many patients before him, she continued. The kids would come up and kiss him, tussle his hair and bring him toys, Engel shared. Mary and Richard," Engel wrote on Twitter. He would shake a little bit, she recalled. Richard Engel on how son Henrys legacy will aid search for cure, according to the International Rett Syndrome Foundation, according to the National Institutes of Health, his condition started to worsen a few months. The Engels got in touch with Zoghbi, whos been researching the disease for many years. He didnt always respond as they expected, but the excitement in his eyes told them he enjoyed and appreciated it. [19] He also covered the Libyan Civil War, where he was nearly shot in Benghazi. Our Rett syndrome research will continue to push as hard as possible to develop treatments. "For everyone following Henry's story, unfortunately he's taken a. It was really amazing watching them work as a team, Zoghbi said. TODAY remembers Richard Engels beloved 6-year-old son, Henry, According to the National Institute of Neurological Disorders and Stroke. Richard Engel's son has a rare mutation of a gene that causes Rett Syndrome, a disorder usually found in girls. She is also working on her first novel, a domestic drama set in rural Regency England. As of April 2022, Richard's net worth is estimated at more than $4 million. Engel wrote a personal essay in 2019 that shared the emotional triumph when his son finally said "dada" at the age of three years old. This material may not be published, broadcast, rewritten, We always surrounded him with love and he returned it, and so much more. "To parents with typically developing children, a little Dada may not seem like a big deal. We will keep fighting for you.". He nonetheless has drawn attention for being the son of Richard Engel, a multi-award-winning TV personality. And neither did Henry. On Thursday, the couple visited TODAY and opened up about their late son, his disease and the new balcony dedicated to his memory at the hospital where he was treated in Houston, Texas. We always surrounded him with love and he returned it, and so much more. Henry, who was born in September 2015, was just an infant when his parents first realized he was not reaching developmental milestones, according to a tribute for Henry on theTexas Children's Hospital website. Reach her at sophie.reardon@viacomcbs.com, First published on August 18, 2022 / 1:26 PM. Privacy Notice NBC News chief foreign correspondent Richard Engel and his wife Mary Forrest are remembering their son Henry, who died in August at 6 years old. Georgia Slater is a writer/reporter on the Parents team at PEOPLE. Zoghbi attributes in part to his parents the fact that Henry lived longer than most boys with the disease. In March 2022, he shared a somber update on Henry's health and said his son had taken a turn for the worse.. Mary and Richard," Engel wrote on Twitter. We were hoping (Henry) would grow out of it. Dr. Huda Zoghbi shared a tribute to Henry at the donor site, having studied his mutation and worked with him at the Texas hospital's Duncan Neurological Research Institute. According to the National Institute of Neurological Disorders and Stroke, Rett syndrome can cause loss of use of the hands, problems with walking, seizures, slowed brain and head growth and intellectual disability. [8], Engel attended the Riverdale Country School, a highly competitive college-prep school in New York City,[9] where at first he struggled with his schoolwork and progress. Engel and his wife, Mary Forrest, welcomed Henry in September 2015 and their second son, Theo, in August 2019. Engel also opened up about the feeling of watching his younger son surpass Henry in developmental milestones. When theyre working in the lab, theyre always thinking about him, she said. "A single devastating typo in his genetic code robbed him of the ability to walk, talk and control his body. 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